One of the most innovative aspects of the international aniridia community is how determined these individuals are to overcome challenges presented by the disorder, as well as to succeed in enjoying their lives to the fullest. The following videos have truly inspired us, and they offer a glimpse into the lives of people who live with this disorder on a daily basis.
6-Year-Old Discusses Her Life with Aniridia
Lisa is inspiring others to live fully despite intense challenges resulting from aniridia! In this video, she discusses what it’s like to live with aniridia, from the perspective of a 6-year-old girl.
Prof. Barbara Käsmann-Kellner MD PhD, Head of the Aniridia Center, Germany Discusses Aniridia & Treatment
Raising awareness and speaking on behalf of the scientific community, Prof. Barbara Käsmann-Kellner MD PhD, Head of Aniridia Center in Germany, Head of the Section of Paediatric Ophthalmology, Orthoptics discusses the causes and treatment options for aniridia.
Teen Marushii Yang Speaks Up About Living with Aniridia
In the face of adversity, those with aniridia often come out swinging. Marushii Yang is no different, and though she may be legally blind as a result of aniridia, she refuses to let this halt her progression in life.
- Surfers With Aniridia Catch WavesJune 30, 2016 - 9:54 pm
Students, including Nadira Calderon who has aniridia, of the Braille Institute of Los Angeles learn to surf at local Manhattan Beach, though a partnership with Learn to Surf LA. These students are defying the odds of what’s possible with vision impairment. Click here to read more
- 12-year-old Belmont swimmer is heading to the Paralympic trialsJune 18, 2016 - 9:48 pm
Madeleine Babcock is a fearless, champion swimmer with aniridia and glaucoma, vying for a chance to compete in the Rio Olympic games. At just 12, she is aiming for a spot on the US Paralympic Team. Click here to read more
- eSight Technology Helps Those with Aniridia SeeMay 11, 2016 - 10:19 pm
For the first time, a 12-year-old girl who is legally blind due to aniridia, was able to see clearly with the help of the breakthrough eSight technology. Normally unable to see across a room, she experienced 20/20 vision for the first time using eSight electronic glasses. Click here to read more